Recital is on it's way!!!

My but it has been a while since I've posted here! Most of my posting has been over on my other blog: Mission Attainable
I'm thinking I may just switch to posting everything in that one.... hmmm..... That's still in debate, however.
But in the mean time, an announcement needs to be made!!

MY SENIOR RECITAL IS ON IT'S WAY!!! WHOOHOO! (My classical one, that is...)
October 28th, at 8pm.

Am I ready!?.. That's the question of the century....

More to come on this matter.... But for now... Bed.

New video: Tea Time!

After being diagnosed with ITP, my best friend and her hubby came to town to spend some time with me....... This is what happened:

http://www.youtube.com/watch?v=kDBJUZtNzlI

Zoe.. the new addition to the family

New Blog!

I decided to start a separate blog just for the ITP stuff, health in general, and recipes:
I've called it: Mission: Attainable (<-- click to see it, if you wish)


This will be for music. :)

(And just for the record... my kitten just walked off with my fingernail clippers...)

A constant up hill

This feels like it will never end! I STILL keep hoping one day I'll wake up and everything will be back and normal again. Alas.. it's not.
I now have a cold... fungus... my period is on it's way.. and my count was 31 on Tuesday. Blarg. I find myself getting mad at everyone just thinking about things... so I'm resolved to stay in my room today as to avoid head biting. I've never been this moody.... not ever. I suppose it's not the greatest idea to blog in my current state... I'm resisting the urge to just go off and rant about everyone and everything. Yeah... think I'll read....

Got a hema!!!!!

WHOOHOO! I finally got an appointment to see a hematologist! Granted... it's not until May 18th.. but it's something! AAAaaaannnnd it's at UC Davis Med Center.... I'm keeping my fingers crossed that he'll be a hotty just like the rest of them when I was there in March. :)
So until then, I'm on my own. I made the call last week to go to 40mg of Pred... and now I'm making the call again to go to 30mg. I haven't told the school doctor yet.... she might not be pleased with that, but hey! You just never know until you try, right? Everyone thought my count would drop more, but it didn't!. so you just never know what'll happen. Needless to say, however, I will be watching my body like a hawk.

Odd headache today... It seemed to go away after every time I peed.... what's that all about? And my pee looked a little cloudy to boot. I'll drink more cran water tomorrow.

I got my medical alert jewelry in the mail a few days ago and have attached it to my platelet awareness bracelet. It makes for a good reminder to me to BE CAREFUL and not go bumping into things. I'm getting better about that, though the new bruise on my leg will tell you otherwise... stupid end table!

Here's to high platelets!!!!!

Oh tomorrow! Bring me joy!

So here's a sum up of prednisone vs. platelet count:

Starting platelet: 14
Week one of 60mg: 88
Week two: 78
Week three: 95
So then take it to 50mg
Week four: 42
Week five: 35

Hhhmmmm.... I see a trend here..... It seems like the Prenisone works, but only in high doses... and that will never do. Despite everyones advice, I dropped the Pred to 40mg (two days ago). So far I haven't had any random bruising.... so I don't think my count has dropped any further (or at least enough to cause symptoms). Yesterday I decided to not eat wheat for a week and see if that helps.... I just have no idea, but I'm willing to try anything. I have a slight pain on my left side.. not sure what that is about... I don't think it's anything more than needing to go to the bathroom though.... I'm not worried yet.

Tomorrow I will go to the county clinic and storm down the door. :)
Oh to see a hematologist! That would be amazing..... This disease is impossible to manage on your own.